- The Hempel family of Reno, Nevada, is struggling with a devastating condition
- Twin girls born in 2004 have Niemann-Pick Type C, a genetic disorder
- Their parents have been aggressively searching for treatments for years
- A form of sugar called cyclodextrin has yielded results where pharmaceuticals failed
Reno, Nevada (CNN)Big wooden planters full of ripe tomatoes. Homemade pickles. Over good wine and grilled steak at the home of Chris and Hugh Hempel, in the hills around Reno, Nevada, the conversation turns to biomedical research and genetics.